Hemos leído sobre ... Transición en reumatología

Última actualización: 21 septiembre 2022
  • Bitencourt N, Lawson E, Bridges J, Carandang K, Chintagunta E, Chiraseveenuprapund P, DeQuattro K, Goh YI, Lee TC, Moore KF, Peterson RG, Roberts JE, Ronis T, Sadun RE, Smitherman EA, Stringer E, White PH, Chang JC; CARRA Transition Workgroup.
    Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results
    J Rheumatol. 2022 Aug 1:jrheum.220262. doi: 10.3899/jrheum.220262. 

  • Ma C, Dushnicky M, Talaat H, Thomas S, Cellucci T, Garner S, Heale L, Matsos M, Beattie K, Batthish M.
    Self-Reported Transition Readiness of Adolescent Patients with Rheumatic Disease: Do the Parents Agree?
    J Pediatr. 2022 Aug;247:155-159. doi: 10.1016/j.jpeds.2022.05.009. Epub 2022 May 11.

JULIO 2022
  • Carandang K, Wells CK, Guglielmo D, Melcher K, Trimble M, Ardoin SP, Chira P.
    Adolescents' and Young Adults' Recommendations for Implementing Healthcare Transition in Rheumatology: A Mixed Methods Study.
    Arthritis Care Res (Hoboken). 2022 Jun 30. doi: 10.1002/acr.24977. Epub ahead of print.

JUNIO 2022
  • Ciosek AL, Makris UE, Kramer J, Bermas BL, Solow EB, Wright T, Bitencourt N.
    Health Literacy and Patient Activation in the Pediatric to Adult Transition in Systemic Lupus Erythematosus: Patient and Health Care Team Perspectives.
    ACR Open Rheumatol. 2022 Jun 18. doi: 10.1002/acr2.11474. Epub ahead of print.

MAYO 2022
  • Mulla I, Yeung RSM, Noone DG, Bell-Peter A, Pagnoux C.
    Paediatric-to-adult transition experience in vasculitis: report of a model of care and outcomes.
    Clin Exp Rheumatol. 2022 May;40(4):772-778. doi: 10.55563/clinexprheumatol/uhsrnm.

MARZO 2022
  • Mikola K, Rebane K, Glerup M, Kautiainen H, Relas H, Peltoniemi S, Aalto K.
    Transition to adult care in Finnish adolescents with juvenile idiopathic arthritis.
    Scand J Rheumatol. 2022 Mar 11:1-5. doi: 10.1080/03009742.2022.2040117. Online ahead of print.

  • García-Rodríguez F, Raygoza-Cortez K, Moreno-Hernandez L, García-Pérez R, Garza Lopez LE, Arana-Guajardo AC, Jáquez-Quintana JO, Villarreal-Treviño AV, de la O-Cavazos ME, Rubio-Pérez N.
    Outcomes of transitional care programs on adolescent chronic inflammatory systemic diseases: systematic review and meta-analyses.
    Pediatr Rheumatol Online J. 2022 Feb 17;20(1):15. doi: 10.1186/s12969-022-00670-1.

  • Mori M, Akioka S, Igarashi T, Inoue Y, Umebayashi H, Ohshima S, Nishiyama S, Hashimoto M, Matsui T, Miyamae T, Yasumi T.
    Transitioning from paediatric to adult rheumatological healthcare: English summary of the Japanese Transition Support Guide.
    Mod Rheumatol. 2022 Feb 28;32(2):248-255. doi: 10.1093/mr/roab071.

  • Teh KL, Hoh SF, Arkachaisri T.
    The Coming-of-Age Transition Care for Adolescents with Rheumatic Disease-Where Are We and What Have We Done in Asia?
    J Clin Med. 2021 Feb 17;10(4):821. doi: 10.3390/jcm10040821.

  • Mulla I, Yeung RSM, Noone D, Bell-Peter A, Pagnoux C.
    Paediatric-to-adult transition experience in vasculitis: report of a model of care and outcomes.
    Clin Exp Rheumatol. 2022 Feb 28. Online ahead of print.

  • Overbury RS, Huynh K, Bohnsack J, Frech T, Hersh A.
    A novel transition clinic structure for adolescent and young adult patients with childhood onset rheumatic disease improves transition outcomes.
    Pediatr Rheumatol Online J. 2021 Dec 1;19(1):164. doi: 10.1186/s12969-021-00651-w.

  • Bitencourt N, Ciosek A, Kramer J, Blair Solow E, Bermas B, Wright T, Nassi L, Makris U.
    "You Just Have to Keep Going, You Can't Give Up": Coping mechanisms among young adults with lupus transferring to adult care.
    Lupus. 2021 Dec;30(14):2221-2229. doi: 10.1177/09612033211061057. Epub 2021 Dec 7.

  • Oliveira Ramos F, Rodrigues A, Magalhaes Martins F, Melo AT, Aguiar F, Brites L, Azevedo S, Duarte AC, Furtado C, Mourão AF, Sequeira G, Cunha I, Figueira R, Melo Gomes JA, Santos MJ, Fonseca JE.
    Health-related quality of life and disability in adults with juvenile idiopathic arthritis: comparison with adult-onset rheumatic diseases.
    RMD Open. 2021 Nov;7(3):e001766. doi: 10.1136/rmdopen-2021-001766

  • Chang JC, Sears C, Bitencourt N, Peterson R, Alperin R, Goh YI, Overbury RS, Sadun R, Smitherman E, White PH, Lawson EF, Carandang K; CARRA Transition Workgroup.
    Implementation of rheumatology health care transition processes and adaptations to systems under stress: a mixed methods study.
    Arthritis Care Res (Hoboken). 2021 Nov 21. doi: 10.1002/acr.24822. Epub ahead of print.

  • Tan J, Tiller G, Gowdie P, Cox A, Munro J, Allen R, Akikusa J.
    Patterns and rates of confirmed transfer of care of patients with Juvenile Idiopathic Arthritis at a tertiary paediatric rheumatology centre.
    Intern Med J. 2021 Sep 8. doi: 10.1111/imj.15509. Online ahead of print.

  • McDonagh JE, Tattersall R, Clinch J, Swan J, Foster HE, McCann L.
    Developmentally appropriate transitional care during the Covid-19 pandemic for young people with juvenile-onset rheumatic and musculoskeletal diseases: the rationale for a position statement.
    Pediatr Rheumatol Online J. 2021 Aug 25;19(1):136. doi: 10.1186/s12969-021-00609-y.

JUNIO 2021
  • Lynn Spiegel, Lori Tucker et al.
    Development and validation of the RACER (Readiness for Adult Care in Rheumatology) transition instrument in youth with juvenile idiopathic arthritis.
    Pediatr Rheumatol Online J. 2021 Jun 5;19(1):83. doi: 10.1186/s12969-021-00579-1.

MAYO 2021
  • Stephens SB, Raphael JL, Zimmerman CT, Garland BH, de Guzman MM, Walsh SM, Hergenroeder AC, Wiemann CM.
    The Utility of Self-Determination Theory in Predicting Transition Readiness in Adolescents With Special Healthcare Needs.
    J Adolesc Health 2021 May 28:S1054-139X(21)00197-X. doi:10.1016/j.jadohealth.2021.04.004.
    Epub ahead of print. PMID: 34059429.

  •  Roberts JE, Halyabar O, Petty CR, Son MB.
    Assessing preparation for care transition among adolescents with rheumatologic disease: a single-center assessment with patient survey.
    Pediatr Rheumatol Online J. 2021 May 1;19(1):61. doi:10.1186/s12969-021-00544-y

MARZO 2021
  • McColl J, Semalulu T, Beattie KA, Alam A, Thomas S, Herrington J, Gorter JW, Cellucci T, Garner S, Heale L, Matsos M, Batthish M.
    Transition Readiness in Adolescents With Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus.
    ACR Open Rheumatol. 2021 Mar 12. doi: 10.1002/acr2.11237. Online ahead of print.

  • Sönmez HE, Koç R, Karadağ ŞG, Aktay Ayaz N.
    The readiness of pediatric rheumatology patients and their parents to transition to adult-oriented treatment.
    Int J Rheum Dis. 2021 Mar;24(3):397-401. doi: 10.1111/1756-185X.14050.

ENERO 2021
  • Sönmez HE, Koç R, Karadağ ŞG, Aktay Ayaz N.
    The readiness of pediatric rheumatology patients and their parents to transition to adult-oriented treatment.
    Int J Rheum Dis. 2021 Jan 15. doi: 10.1111/1756-185X.14050. Epub ahead of print. PMID: 33452739.

  • de Oliveira RJ, Kishimoto ST, de Souza DP, Fernandes PT, Marini R, Appenzeller S.
    The importance of transition from pediatric to adult rheumatology care in juvenile idiopathic arthritis.
    Expert Rev Clin Immunol. 2021 Jan 22:1-7. doi: 10.1080/1744666X.2020.1865157. Epub ahead of print. PMID: 33393405.

  • Barnabe C, Chomistek K, Luca N, Hazlewood G, Barber CEH, Steiman A, Stringer E.
    National Priorities for High Quality Rheumatology Transition Care for Youth in Canada.
    J Rheumatol. 2020 Oct 15:jrheum.200790. doi: 10.3899/jrheum.200790. Online ahead of print.

  • Bitencourt N, Kramer J, Bermas BL, Solow EB, Wright T, Makris UE.
    Clinical Team Perspectives on the Psychosocial Aspects of Transition to Adult Care for Patients with Childhood-Onset Systemic Lupus Erythematosus.
    Arthritis Care Res (Hoboken). 2020 Sep 25. doi: 10.1002/acr.24463. Online ahead of print.

  • García-Fernández A, Gerardi MC, Crisafulli F, Filippini M, Fredi M, Gorla R, Lazzaroni MG, Lojacono A, Nalli C, Ramazzotto F, Taglietti M, Zanardini C, Zatti S, Franceschini F, Tincani A, Andreoli L.
    Disease course and obstetric outcomes of pregnancies in juvenile idiopathic arthritis: are there any differences among disease subtypes? A single-centre retrospective study of prospectively followed pregnancies in a dedicated pregnancy clinic.
    Clin Rheumatol. 2020 Sep 18. doi: 10.1007/s10067-020-05404-w. Online ahead of print.

  • Matsumoto T, Mori M.
    Questionnaire survey on transitional care for patients with juvenile idiopathic arthritis (JIA) and families.
    Mod Rheumatol. 2020 Aug 24:1-18. doi: 10.1080/14397595.2020.1813369.

JULIO 2020
  • Haro SL, Lawson EF, Hersh AO.
    Disease activity and health-care utilization among young adults with childhood-onset lupus transitioning to adult care: data from the Pediatric Lupus Outcomes Study.
    Lupus. 2020 Jul 8:961203320938868. doi: 10.1177/0961203320938868. Epub ahead of print.

  • Chauveau S, Jeny F, Montagne ME, Taam RA, Houdouin V, Meinzer U, Delacourt C, Epaud R, Aubart FC, Chapelon-Abric C, Israël-Biet D, Juvin K, Dossier A, Bodaghi B, Prévot G, Naccache JM, Mattioni S, Deschildre A, Brouard J, Tazi A, Meckenstock R, Didier M, Haroche J, Clement A, Bernaudin JF, Nunes H, Valeyre D, Nathan N, Gsf FTFSG.
    Child-Adult Transition in Sarcoidosis: A Series of 52 Patients.
    J Clin Med. 2020 Jul 3;9(7):E2097. doi: 10.3390/jcm9072097.

MAYO 2020
  • Kelly A, Niddrie F, Tunnicliffe DJ, Matus Gonzalez A, Hanson C, Jiang I, Major G, Singh-Grewal D, Tymms K, Tong A.
    Patients' attitudes and experiences of transition from paediatric to adult healthcare in rheumatology: a qualitative systematic review.
    Rheumatology (Oxford). 2020 May 15:keaa168.
  • Verma T, Rohan J.
    Examination of Transition Readiness, Medication Adherence, and Resilience in Pediatric Chronic Illness Populations: A Pilot Study.
    Int J Environ Res Public Health. 2020 Mar 15;17(6). pii: E1905. 
MARZO 2020
  • Verma T, Rohan J.
    Examination of Transition Readiness, Medication Adherence, and Resilience in Pediatric Chronic Illness Populations: A Pilot Study.
    Int J Environ Res Public Health. 2020 Mar 15;17(6). pii: E1905. 
  • Chang JC, Knight AM, Lawson EF.
    Patterns of Health Care Utilization and Medication Adherence Among Youth with Systemic Lupus Erythematosus During Transfer from Pediatric to Adult Care.
    J Rheumatol. 2020 Feb 1. pii: jrheum.191029. doi: 10.3899/jrheum.191029.
  • Sadun RE.
    Mind the Gap: Improving Care in Pediatric-to Adult Rheumatology Transition Through Education.
    Rheum Dis Clin North Am. 2020 Feb;46(1):103-118. doi: 10.1016/j.rdc.2019.09.008.
  • Zisman D, Samad A, Ardoin SP, Chira P, White P, Lavi I, von Scheven E, Lawson EF, Hing M, Mellins ED.
    US Adult Rheumatologists' Perspective on the Transition Process for Young Adults with Rheumatic Conditions.
    Arthritis Care Res (Hoboken). 2019 Feb 11. doi: 10.1002/acr.23845. [Epub ahead of print]
  • Relas H, Kosola S.
    Acceptable quality of life and low disease activity achievable among transition phase patients with rheumatic disease
    Clin Rheumatol. 2018 Oct 29. doi: 10.1007/s10067-018-4351-4. [Epub ahead of print]
  • Walter M, Kamphuis S, van Pelt P, de Vroed A, Hazes JMW.
    Successful implementation of a clinical transition pathway for adolescents with juvenile-onset rheumatic and musculoskeletal diseases.
    Pediatr Rheumatol Online J. 2018 Aug 3;16(1):50. doi: 10.1186/s12969-018-0268-3.
  • Lazaroff SM, Meara A, Tompkins MK, Peters E, Ardoin SP.
    How Do Health Literacy, Numeric Competencies, and Patient Activation Relate to Transition Readiness in Adolescents and Young Adults with Rheumatic Diseases?
    Arthritis Care Res (Hoboken). 2018 Aug 29. doi: 10.1002/acr.23739. [Epub ahead of print]
JULIO 2018
  • Sabbagh S, Ronis T, White PH.
    Pediatric rheumatology: addressing the transition to adult-orientated health care.
    Open Access Rheumatol. 2018 Jul 3;10:83-95. doi: 10.2147/OARRR.S138370. eCollection 2018.
  • Akre C, Suris JC, Belot A, Couret M, Dang TT, Duquesne A, Fonjallaz B, Georgin-Lavialle S, Larbre JP, Mattar J, Meynard A, Schalm S, Hofer M.
    Building a transitional care checklist in rheumatology: A Delphi-like survey.
    Joint Bone Spine. 2018 Jul;85(4):435-440. doi: 10.1016/j.jbspin.2017.09.003. Epub 2017 Sep 28.
ABRIL 2018
  • Conti F, Pontikaki I, D'Andrea M, Ravelli A, De Benedetti F.
    Patients with juvenile idiopathic arthritis become adults: the role of transitional care.
    Clin Exp Rheumatol. 2018 Apr 13. [Epub ahead of print] https://www.ncbi.nlm.nih.gov/pubmed/29652654
ENERO 2018
  • van Pelt PA, Dolhain RJEM, Kruize AA, Ammerlaan JJW, Hazes JW, Bijlsma JWJ, Wulffraat NM.
    Disease activity and dropout in young persons with juvenile idiopathic arthritis in transition of care: a longitudinal observational study.
    Clin Exp Rheumatol. 2018 Jan-Feb;36(1):163-168.