Hemos leído sobre ... Transición en reumatología
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Argraves M, Murray E, Taxter A, Wise K, Jensen PT, Goldstein-Leever A, Thomas B, Scott A, Gallup J, Leone A, Ardoin SP, Sivaraman V.
Implementation of an automated transition readiness assessment in a pediatric rheumatology clinic.
Front Pediatr. 2024 Oct 17;12:1457651. doi: 10.3389/fped.2024.1457651. eCollection 2024
https://pubmed.ncbi.nlm.nih.gov/39483530/ -
Haney H, Klotsche J, Niewerth M, Hansmann S, Erbis G, Reiser C, Saur SJ, Hoff P, Seipelt E, Maier A, Schalm S, Tatsis S, Foeldvari I, Kötter I, Minden K.
Assessing Competencies, Needs, and Satisfaction With the Transition From Pediatric to Adult Health Care in Rheumatology: Development and Validation of the Transition-KompAZ
J Rheumatol. 2024 Oct 1;51(10):1048. doi: 10.3899/jrheum.2024-0097.C1.
https://pubmed.ncbi.nlm.nih.gov/39227058/
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Oliveira Ramos F, Carolina Zinterl C, Fonseca JE
A lifelong journey: Long-term perspectives on Juvenile Idiopathic Arthritis
Best Pract Res Clin Rheumatol 2024 Sep;38(3):101984. doi: 10.1016/j.berh.2024.101984.
https://pubmed.ncbi.nlm.nih.gov/39068102/
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Ariane A, Oey C, Sumariyono S, Herqutanto H, Kurniati N, Hidayat R, Shatri H.
Autoimmune rheumatic transitional care model development.
BMC Rheumatol. 2024 Aug 29;8(1):38. doi: 10.1186/s41927-024-00407-5.
https://pubmed.ncbi.nlm.nih.gov/39210482/ -
Inoue Y, Sakai R, Inoue E, Mitsunaga K, Shimizu M, Sugihara T, et al.
Nationwide epidemiological survey of juvenile idiopathic arthritis during transition to young adulthood in Japan using the National Database of Designated Incurable Diseases of Japan.
Mod Rheumatol. 2024 Aug 22:roae076. doi: 10.1093/mr/roae076.
https://pubmed.ncbi.nlm.nih.gov/39172631/ -
Elhani I, Hentgen V, Quartier P, Bader-Meunier B, Kone-Paut I, Neven B, et al.
Transition to Adult Care in Autoinflammatory Diseases: A Cohort of 111 French Patients.
J Clin Rheumatol. 2024 Aug 26. doi: 10.1097/RHU.0000000000002132.
https://pubmed.ncbi.nlm.nih.gov/39186594/
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Cintron D, Chang JC, Sadun RE.
Transition to Adult Rheumatology Care: A Disease-Specific Guide.
J Clin Rheumatol. 2024 Jun 1;30(4):159-167. doi: 10.1097/RHU.0000000000002062.
https://pubmed.ncbi.nlm.nih.gov/38527973/
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Vermé A, Wenemark M, Jungner JG, Broström E, Bartholdson C.
Ready to leave? - Adolescents' and parents' perceptions of transition from paediatric to adult rheumatology care.
BMC Health Serv Res. 2024 Jul 10;24(1):795. doi: 10.1186/s12913-024-11265-9.
https://pubmed.ncbi.nlm.nih.gov/38987769/ -
Heera S, Beattie K, Punthakee Z, DiRezze B, Herrington J, Cellucci T, et al.
The TRUST Study-TRansition US Together: Evaluating the Impact of a Parent- and Adolescent-Centered Transition Toolkit on Transition Readiness in Patients with Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus.
Children (Basel). 2024 Jul 20;11(7):881. doi: 10.3390/children11070881.
https://pubmed.ncbi.nlm.nih.gov/39062330/
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Huynh A, Buckle J, Cox A, Czerniecki L, Gowdie P, Renton W, et al.
The transition process for paediatric rheumatology clinic patients at a single tertiary paediatric rheumatology centre in Australia.
J Paediatr Child Health. 2024 May 19. doi: 10.1111/jpc.16563. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/38764198/
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Arons A, Tsevat RK, Hotez E, Huang H, Nott R, Ahn H, et al
A Quality Improvement Initiative to Improve Health Care Transition Planning at Adolescent Well Visits.
Acad Pediatr. 2024 Mar 20:S1876-2859(24)00112-8. doi: 10.1016/j.acap.2024.03.013. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/38519016/
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Choukair D, Patry C, Lehmann R, Treiber D, Hoffmann GF, Grasemann C, et al.
Resource utilization and costs of transitioning from pediatric to adult care for patients with chronic autoinflammatory and autoimmune disorders.
Pediatr Rheumatol Online J. 2024 Feb 23;22(1):28. doi: 10.1186/s12969-024-00963-7.
https://pubmed.ncbi.nlm.nih.gov/38395977/
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Şahin N, Sönmez HE, Aktay Ayaz N, Sözeri B.
Addressing the unmet needs of transitional care in juvenile idiopathic arthritis.
Rheumatology (Oxford). 2023 Sep 29:kead518. doi: 10.1093/rheumatology/kead518. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/37774006/
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Dushnicky MJ, Fine C, Cellucci T, Garner S, Heale L, Matsos M, Beattie KA, Batthish M.
Mind the Gap: A Longitudinal Analysis of the Experiences of Adolescents and Parents in a Rheumatology Transition Clinic
J Clin Rheumatol. 2023 Aug 1;29(5):235-239. doi: 10.1097/RHU.0000000000001988. Epub 2023 May 25.
https://pubmed.ncbi.nlm.nih.gov/37221634/
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Felis-Giemza A, Chmurzyńska K, Kołodziejczyk B, Gazda A.
Revising diagnosis of juvenile idiopathic arthritis in adults: a single-center retrospective study.
Rheumatol Int. 2023 Jul;43(7):1307-1311. doi: 10.1007/s00296-023-05293-7.
https://pubmed.ncbi.nlm.nih.gov/36859560/ -
de Sonnaville WFC, Speksnijder CM, Zuithoff NPA, Heijstek MW, Wulffraat NM, Steenks MH, Rosenberg AJWP.
Clinically Established Temporomandibular Involvement in Adults With Juvenile Idiopathic Arthritis.
J Rheumatol. 2023 Jul 1:jrheum.2023-0204. doi: 10.3899/jrheum.2023-0204. Epub ahead of print.
https://pubmed.ncbi.nlm.nih.gov/37399466/
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Dushnicky MJ, Fine C, Cellucci T, Garner S, Heale L, Matsos M, Beattie KA, Batthish M.
Mind the Gap: A Longitudinal Analysis of the Experiences of Adolescents and Parents in a Rheumatology Transition Clinic.
J Clin Rheumatol. 2023 May 24. doi: 10.1097/RHU.0000000000001988. Epub ahead of print.
https://pubmed.ncbi.nlm.nih.gov/37221634/
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Teh KL, Hoh SF, Chan SB, Gao X, Das L, Book YX, Arkachaisri T.
Experience of an Asian paediatric rheumatology transition programme: high success rate with the use of transition readiness assessment tool.
Singapore Med J. 2023 Mar 24. doi: 10.4103/singaporemedj.SMJ-2021-279. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/37026359/ -
Ross J, Bowden MR, Yu C, Diaz-Thomas A.
Transition of young adults with metabolic bone diseases to adult care.
Front Endocrinol (Lausanne). 2023 Mar 17;14:1137976. doi: 10.3389/fendo.2023.1137976.
https://pubmed.ncbi.nlm.nih.gov/37008909/
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Israni M, Nicholson B, Mahlaoui N, Obici L, Rossi-Semerano L, Lachmann H, et al; RITA-ERN Transition Working Group Consortium.
Current Transition Practice for Primary Immunodeficiencies and Autoinflammatory Diseases in Europe: a RITA-ERN Survey.
J Clin Immunol. 2023 Jan;43(1):206-216. doi: 10.1007/s10875-022-01345-y. Epub 2022 Oct 12.
https://pubmed.ncbi.nlm.nih.gov/36222999/ -
Smitherman EA, Chahine RA, Bitencourt N, Rahman AKMF, Lawson EF, Chang JC; CARRA Registry Investigators and CARRA Transition Workgroup.
Patient-Reported Outcomes Among Transition-Age Young Adults With Juvenile Idiopathic Arthritis in the Childhood Arthritis and Rheumatology Research Alliance Registry.
J Rheumatol. 2023 Jan;50(1):98-106. doi: 10.3899/jrheum.220514. Epub 2022 Sep 15.
https://pubmed.ncbi.nlm.nih.gov/36109074/
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Boeker LS, Kuemmerle-Deschner JB, Saur SJ, Klotsche J, Erbis G, Hansmann S.
Health-related quality of life, continuity of care and patient satisfaction: long-term outcomes of former patients of the Tuebingen Transition Program (TTP) - a retrospective cohort study
Pediatr Rheumatol Online J. 2022 Dec 27;20(1):121. doi: 10.1186/s12969-022-00776-6.
https://pubmed.ncbi.nlm.nih.gov/36575486/ -
Thomsen EL, Boisen KA, Hanghøj S, Hansson H, Grabow Scheelhardt HV, Christensen ST, Esbensen BA.
A comprehensive transfer program from pediatrics to adult care for parents of adolescents with chronic illness (ParTNerSTEPs): study protocol for a randomized controlled trial
Trials. 2022 Dec 20;23(1):1034. doi: 10.1186/s13063-022-06997-0.
https://pubmed.ncbi.nlm.nih.gov/36539857/
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Currie GR, Harris M, McClinton L, Trehan N, Van Dusen A, Shariff M, Kuzmyn T, Marshall DA.
Transitions from pediatric to adult rheumatology care for juvenile idiopathic arthritis: a patient led qualitative study.
BMC Rheumatol. 2022 Nov 14;6(1):85. doi: 10.1186/s41927-022-00316-5.
https://pubmed.ncbi.nlm.nih.gov/36376987/ -
Bitencourt N, Lawson E, Bridges J, Carandang K, Chintagunta E, Chiraseveenuprapund P, et al.
Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results.
J Rheumatol. 2022 Nov;49(11):1201-1213. doi: 10.3899/jrheum.220262.
https://pubmed.ncbi.nlm.nih.gov/35914787/
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Israni M, Nicholson B, Mahlaoui N, Obici L, Rossi-Semerano L, Lachmann H, et al; RITA-ERN Transition Working Group Consortium.
Current Transition Practice for Primary Immunodeficiencies and Autoinflammatory Diseases in Europe: a RITA-ERN Survey.
J Clin Immunol. 2022 Oct 12. doi: 10.1007/s10875-022-01345-y. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/36222999/ -
Mikola K, Rebane K, Arnstad ED, Berntson L, Fasth A, Glerup M, Herlin T, Kautiainen H, Nielsen S, Nordal E, Peltoniemi S, Rygg M, Rypdal V, Zak M, Aalto K.
Transitioning patients with juvenile idiopathic arthritis to adult care: the Nordic experience.
Pediatr Rheumatol Online J. 2022 Oct 1;20(1):84. doi: 10.1186/s12969-022-00742-2.
https://pubmed.ncbi.nlm.nih.gov/36182898/ -
Roberts JE, Halyabar O, Petty CR, Alfieri M, Esty B, Dallas J, Hazen M, Stein S, Son MBF.
Longitudinal assessment of preparation for care transition among adolescents and young adults with rheumatologic disease: a single-center pilot study.
Pediatr Rheumatol Online J. 2022 Oct 21;20(1):93. doi: 10.1186/s12969-022-00751-1.
https://pubmed.ncbi.nlm.nih.gov/36271446/
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Bitencourt N, Lawson E, Bridges J, Carandang K, Chintagunta E, Chiraseveenuprapund P, DeQuattro K, Goh YI, Lee TC, Moore KF, Peterson RG, Roberts JE, Ronis T, Sadun RE, Smitherman EA, Stringer E, White PH, Chang JC; CARRA Transition Workgroup.
Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results
J Rheumatol. 2022 Aug 1:jrheum.220262. doi: 10.3899/jrheum.220262.
https://pubmed.ncbi.nlm.nih.gov/35914787/ -
Ma C, Dushnicky M, Talaat H, Thomas S, Cellucci T, Garner S, Heale L, Matsos M, Beattie K, Batthish M.
Self-Reported Transition Readiness of Adolescent Patients with Rheumatic Disease: Do the Parents Agree?
J Pediatr. 2022 Aug;247:155-159. doi: 10.1016/j.jpeds.2022.05.009. Epub 2022 May 11.
https://pubmed.ncbi.nlm.nih.gov/35561803/
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Carandang K, Wells CK, Guglielmo D, Melcher K, Trimble M, Ardoin SP, Chira P.
Adolescents' and Young Adults' Recommendations for Implementing Healthcare Transition in Rheumatology: A Mixed Methods Study.
Arthritis Care Res (Hoboken). 2022 Jun 30. doi: 10.1002/acr.24977. Epub ahead of print.
https://pubmed.ncbi.nlm.nih.gov/35771592/
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Ciosek AL, Makris UE, Kramer J, Bermas BL, Solow EB, Wright T, Bitencourt N.
Health Literacy and Patient Activation in the Pediatric to Adult Transition in Systemic Lupus Erythematosus: Patient and Health Care Team Perspectives.
ACR Open Rheumatol. 2022 Jun 18. doi: 10.1002/acr2.11474. Epub ahead of print.
https://pubmed.ncbi.nlm.nih.gov/35716025/
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Mulla I, Yeung RSM, Noone DG, Bell-Peter A, Pagnoux C.
Paediatric-to-adult transition experience in vasculitis: report of a model of care and outcomes.
Clin Exp Rheumatol. 2022 May;40(4):772-778. doi: 10.55563/clinexprheumatol/uhsrnm.
https://pubmed.ncbi.nlm.nih.gov/35238755/
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Mikola K, Rebane K, Glerup M, Kautiainen H, Relas H, Peltoniemi S, Aalto K.
Transition to adult care in Finnish adolescents with juvenile idiopathic arthritis.
Scand J Rheumatol. 2022 Mar 11:1-5. doi: 10.1080/03009742.2022.2040117. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/35272583/
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García-Rodríguez F, Raygoza-Cortez K, Moreno-Hernandez L, García-Pérez R, Garza Lopez LE, Arana-Guajardo AC, Jáquez-Quintana JO, Villarreal-Treviño AV, de la O-Cavazos ME, Rubio-Pérez N.
Outcomes of transitional care programs on adolescent chronic inflammatory systemic diseases: systematic review and meta-analyses.
Pediatr Rheumatol Online J. 2022 Feb 17;20(1):15. doi: 10.1186/s12969-022-00670-1.
Https://pubmed.ncbi.nlm.nih.gov/35177101/ -
Mori M, Akioka S, Igarashi T, Inoue Y, Umebayashi H, Ohshima S, Nishiyama S, Hashimoto M, Matsui T, Miyamae T, Yasumi T.
Transitioning from paediatric to adult rheumatological healthcare: English summary of the Japanese Transition Support Guide.
Mod Rheumatol. 2022 Feb 28;32(2):248-255. doi: 10.1093/mr/roab071.
https://pubmed.ncbi.nlm.nih.gov/34918115/ -
Teh KL, Hoh SF, Arkachaisri T.
The Coming-of-Age Transition Care for Adolescents with Rheumatic Disease-Where Are We and What Have We Done in Asia?
J Clin Med. 2021 Feb 17;10(4):821. doi: 10.3390/jcm10040821.
https://pubmed.ncbi.nlm.nih.gov/33671413/ -
Mulla I, Yeung RSM, Noone D, Bell-Peter A, Pagnoux C.
Paediatric-to-adult transition experience in vasculitis: report of a model of care and outcomes.
Clin Exp Rheumatol. 2022 Feb 28. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/35238755/
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Overbury RS, Huynh K, Bohnsack J, Frech T, Hersh A.
A novel transition clinic structure for adolescent and young adult patients with childhood onset rheumatic disease improves transition outcomes.
Pediatr Rheumatol Online J. 2021 Dec 1;19(1):164. doi: 10.1186/s12969-021-00651-w.
https://pubmed.ncbi.nlm.nih.gov/34852832/ -
Bitencourt N, Ciosek A, Kramer J, Blair Solow E, Bermas B, Wright T, Nassi L, Makris U.
"You Just Have to Keep Going, You Can't Give Up": Coping mechanisms among young adults with lupus transferring to adult care.
Lupus. 2021 Dec;30(14):2221-2229. doi: 10.1177/09612033211061057. Epub 2021 Dec 7.
https://pubmed.ncbi.nlm.nih.gov/34874764/
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Oliveira Ramos F, Rodrigues A, Magalhaes Martins F, Melo AT, Aguiar F, Brites L, Azevedo S, Duarte AC, Furtado C, Mourão AF, Sequeira G, Cunha I, Figueira R, Melo Gomes JA, Santos MJ, Fonseca JE.
Health-related quality of life and disability in adults with juvenile idiopathic arthritis: comparison with adult-onset rheumatic diseases.
RMD Open. 2021 Nov;7(3):e001766. doi: 10.1136/rmdopen-2021-001766
https://pubmed.ncbi.nlm.nih.gov/34819385/ -
Chang JC, Sears C, Bitencourt N, Peterson R, Alperin R, Goh YI, Overbury RS, Sadun R, Smitherman E, White PH, Lawson EF, Carandang K; CARRA Transition Workgroup.
Implementation of rheumatology health care transition processes and adaptations to systems under stress: a mixed methods study.
Arthritis Care Res (Hoboken). 2021 Nov 21. doi: 10.1002/acr.24822. Epub ahead of print.
https://pubmed.ncbi.nlm.nih.gov/34806346/
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Tan J, Tiller G, Gowdie P, Cox A, Munro J, Allen R, Akikusa J.
Patterns and rates of confirmed transfer of care of patients with Juvenile Idiopathic Arthritis at a tertiary paediatric rheumatology centre.
Intern Med J. 2021 Sep 8. doi: 10.1111/imj.15509. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/34498355/
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McDonagh JE, Tattersall R, Clinch J, Swan J, Foster HE, McCann L.
Developmentally appropriate transitional care during the Covid-19 pandemic for young people with juvenile-onset rheumatic and musculoskeletal diseases: the rationale for a position statement.
Pediatr Rheumatol Online J. 2021 Aug 25;19(1):136. doi: 10.1186/s12969-021-00609-y.
https://pubmed.ncbi.nlm.nih.gov/34433477/
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Lynn Spiegel, Lori Tucker et al.
Development and validation of the RACER (Readiness for Adult Care in Rheumatology) transition instrument in youth with juvenile idiopathic arthritis.
Pediatr Rheumatol Online J. 2021 Jun 5;19(1):83. doi: 10.1186/s12969-021-00579-1.
https://pubmed.ncbi.nlm.nih.gov/34090474/
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Stephens SB, Raphael JL, Zimmerman CT, Garland BH, de Guzman MM, Walsh SM, Hergenroeder AC, Wiemann CM.
The Utility of Self-Determination Theory in Predicting Transition Readiness in Adolescents With Special Healthcare Needs.
J Adolesc Health 2021 May 28:S1054-139X(21)00197-X. doi:10.1016/j.jadohealth.2021.04.004.
Epub ahead of print. PMID: 34059429.
https://pubmed.ncbi.nlm.nih.gov/34059429/ -
Roberts JE, Halyabar O, Petty CR, Son MB.
Assessing preparation for care transition among adolescents with rheumatologic disease: a single-center assessment with patient survey.
Pediatr Rheumatol Online J. 2021 May 1;19(1):61. doi:10.1186/s12969-021-00544-y
https://pubmed.ncbi.nlm.nih.gov/33933123/
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McColl J, Semalulu T, Beattie KA, Alam A, Thomas S, Herrington J, Gorter JW, Cellucci T, Garner S, Heale L, Matsos M, Batthish M.
Transition Readiness in Adolescents With Juvenile Idiopathic Arthritis and Childhood-Onset Systemic Lupus Erythematosus.
ACR Open Rheumatol. 2021 Mar 12. doi: 10.1002/acr2.11237. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/33711192/ -
Sönmez HE, Koç R, Karadağ ŞG, Aktay Ayaz N.
The readiness of pediatric rheumatology patients and their parents to transition to adult-oriented treatment.
Int J Rheum Dis. 2021 Mar;24(3):397-401. doi: 10.1111/1756-185X.14050.
https://pubmed.ncbi.nlm.nih.gov/33452739/
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Bitencourt N, Makris UE, Solow EB, Wright T, Reisch EJ, Bermas BL.
Predictors of Adverse outcomes in patients with systemic lupus erythematosus transitioning to adult care.
Semin Arthritis Rheum. 2021 Feb 10;51(2):353-359. doi: 10.1016/j.semarthrit.2021.02.001.
https://pubmed.ncbi.nlm.nih.gov/33601191/ -
Johnson K, Edens C, Sadun RE, Chira P, Hersh AO, Goh YI, Hui-Yuen J, Singer NG, Spiegel LR, Stinson JN, White PH, Lawson E; CARRA Transition Workgroup.
Differences in Health Care Transition Views, Practices, and Barriers Amongst North American Pediatric Rheumatology Clinicians from 2010 to 2018.
J Rheumatol. 2021 Feb 1:jrheum.200196. doi: 10.383899/jrheum.200196.
https://pubmed.ncbi.nlm.nih.gov/33526621/
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Sönmez HE, Koç R, Karadağ ŞG, Aktay Ayaz N.
The readiness of pediatric rheumatology patients and their parents to transition to adult-oriented treatment.
Int J Rheum Dis. 2021 Jan 15. doi: 10.1111/1756-185X.14050. Epub ahead of print. PMID: 33452739.
https://pubmed.ncbi.nlm.nih.gov/33452739/ -
de Oliveira RJ, Kishimoto ST, de Souza DP, Fernandes PT, Marini R, Appenzeller S.
The importance of transition from pediatric to adult rheumatology care in juvenile idiopathic arthritis.
Expert Rev Clin Immunol. 2021 Jan 22:1-7. doi: 10.1080/1744666X.2020.1865157. Epub ahead of print. PMID: 33393405.
https://pubmed.ncbi.nlm.nih.gov/33393405/
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Barnabe C, Chomistek K, Luca N, Hazlewood G, Barber CEH, Steiman A, Stringer E.
National Priorities for High Quality Rheumatology Transition Care for Youth in Canada.
J Rheumatol. 2020 Oct 15:jrheum.200790. doi: 10.3899/jrheum.200790. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/33060318/
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Bitencourt N, Kramer J, Bermas BL, Solow EB, Wright T, Makris UE.
Clinical Team Perspectives on the Psychosocial Aspects of Transition to Adult Care for Patients with Childhood-Onset Systemic Lupus Erythematosus.
Arthritis Care Res (Hoboken). 2020 Sep 25. doi: 10.1002/acr.24463. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/32976698/ -
García-Fernández A, Gerardi MC, Crisafulli F, Filippini M, Fredi M, Gorla R, Lazzaroni MG, Lojacono A, Nalli C, Ramazzotto F, Taglietti M, Zanardini C, Zatti S, Franceschini F, Tincani A, Andreoli L.
Disease course and obstetric outcomes of pregnancies in juvenile idiopathic arthritis: are there any differences among disease subtypes? A single-centre retrospective study of prospectively followed pregnancies in a dedicated pregnancy clinic.
Clin Rheumatol. 2020 Sep 18. doi: 10.1007/s10067-020-05404-w. Online ahead of print.
https://pubmed.ncbi.nlm.nih.gov/32945981/
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Matsumoto T, Mori M.
Questionnaire survey on transitional care for patients with juvenile idiopathic arthritis (JIA) and families.
Mod Rheumatol. 2020 Aug 24:1-18. doi: 10.1080/14397595.2020.1813369.
https://pubmed.ncbi.nlm.nih.gov/32838644/
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Haro SL, Lawson EF, Hersh AO.
Disease activity and health-care utilization among young adults with childhood-onset lupus transitioning to adult care: data from the Pediatric Lupus Outcomes Study.
Lupus. 2020 Jul 8:961203320938868. doi: 10.1177/0961203320938868. Epub ahead of print.
https://pubmed.ncbi.nlm.nih.gov/32640935/ -
Chauveau S, Jeny F, Montagne ME, Taam RA, Houdouin V, Meinzer U, Delacourt C, Epaud R, Aubart FC, Chapelon-Abric C, Israël-Biet D, Juvin K, Dossier A, Bodaghi B, Prévot G, Naccache JM, Mattioni S, Deschildre A, Brouard J, Tazi A, Meckenstock R, Didier M, Haroche J, Clement A, Bernaudin JF, Nunes H, Valeyre D, Nathan N, Gsf FTFSG.
Child-Adult Transition in Sarcoidosis: A Series of 52 Patients.
J Clin Med. 2020 Jul 3;9(7):E2097. doi: 10.3390/jcm9072097.
https://pubmed.ncbi.nlm.nih.gov/32635292/
- Kelly A, Niddrie F, Tunnicliffe DJ, Matus Gonzalez A, Hanson C, Jiang I, Major G, Singh-Grewal D, Tymms K, Tong A.
Patients' attitudes and experiences of transition from paediatric to adult healthcare in rheumatology: a qualitative systematic review.
Rheumatology (Oxford). 2020 May 15:keaa168.
https://doi.org/10.1093/rheumatology/keaa168 - Verma T, Rohan J.
Examination of Transition Readiness, Medication Adherence, and Resilience in Pediatric Chronic Illness Populations: A Pilot Study.
Int J Environ Res Public Health. 2020 Mar 15;17(6). pii: E1905.
https://www.ncbi.nlm.nih.gov/pubmed/32183424
- Verma T, Rohan J.
Examination of Transition Readiness, Medication Adherence, and Resilience in Pediatric Chronic Illness Populations: A Pilot Study.
Int J Environ Res Public Health. 2020 Mar 15;17(6). pii: E1905.
https://www.ncbi.nlm.nih.gov/pubmed/32183424
- Chang JC, Knight AM, Lawson EF.
Patterns of Health Care Utilization and Medication Adherence Among Youth with Systemic Lupus Erythematosus During Transfer from Pediatric to Adult Care.
J Rheumatol. 2020 Feb 1. pii: jrheum.191029. doi: 10.3899/jrheum.191029.
https://www.ncbi.nlm.nih.gov/pubmed/32007936 - Sadun RE.
Mind the Gap: Improving Care in Pediatric-to Adult Rheumatology Transition Through Education.
Rheum Dis Clin North Am. 2020 Feb;46(1):103-118. doi: 10.1016/j.rdc.2019.09.008.
https://www.ncbi.nlm.nih.gov/pubmed/31757279
- Zisman D, Samad A, Ardoin SP, Chira P, White P, Lavi I, von Scheven E, Lawson EF, Hing M, Mellins ED.
US Adult Rheumatologists' Perspective on the Transition Process for Young Adults with Rheumatic Conditions.
Arthritis Care Res (Hoboken). 2019 Feb 11. doi: 10.1002/acr.23845. [Epub ahead of print]
https://www.ncbi.nlm.nih.gov/pubmed/30740937
- Relas H, Kosola S.
Acceptable quality of life and low disease activity achievable among transition phase patients with rheumatic disease
Clin Rheumatol. 2018 Oct 29. doi: 10.1007/s10067-018-4351-4. [Epub ahead of print]
https://www.ncbi.nlm.nih.gov/pubmed/30374749
- Walter M, Kamphuis S, van Pelt P, de Vroed A, Hazes JMW.
Successful implementation of a clinical transition pathway for adolescents with juvenile-onset rheumatic and musculoskeletal diseases.
Pediatr Rheumatol Online J. 2018 Aug 3;16(1):50. doi: 10.1186/s12969-018-0268-3.
https://www.ncbi.nlm.nih.gov/pubmed/30075795 - Lazaroff SM, Meara A, Tompkins MK, Peters E, Ardoin SP.
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